On my Way to Lutsen!

Good Morning,
I'm closing out the year as I have the last two at Lutsen, skiing with the whole family. Nothing could be better!
Thank you to all who have helped me through this month, and for that matter the whole year, for all those wonderful Christmas presents, the strong prayers, and the abundant love I've been surrounded with. I am the luckiest person I know right now.
My family gave me the most gorgeous pictures. I can't wait to get them hung on my wall. Proof, that Gene and I did good. Priceless! All the other gifts were just frosting on the cake.
Happy New Year, and much love to all of you. m
P.S. I'll tell you all about the ski trip next year!!! 2010?! I can't believe it!

Merry Christmas

And may God bless us everyone!!! It's snowing like crazy in Minnesota, I've packed my bag and Annie and Doug and family and Doug's mom and dad will all go to church together at 4 p.m. this afternoon, and then back to Annies for dinner, where Bill and Kim and family may join us too. But I think midnite Mass is out....don't want the kids to be out or myself in this weather. I'll sleep at Annies and maybe come home sometime tomorrow. Think the get together with Gene's family might not make it either. Just hoping that the roads are good enough for Tom and Karen and family to drive up on Saturday. Progressive dinner on Sunday, and then dessert and Santa at my house. What a crazy weekend. Love and prayers to all, m

Some Good News Regarding Frank

Hi,

Thank you for all your prayers and I am sure Millie, Your Mom and others have been on the beads.

Frank is feeling better, and received good information at the doctors on Monday.

The whole thing about blood gasses was much ado about nothing. It sure goes to show that seeing doctors that are not familiar with you and your history can really mess things up. Recently his kidney doctor left and he has a new kidney doctor looking at one test and getting a bit overexcited. Than two weeks ago seeing a doctor he had not seen before in Lung area carrying on with kidney doctors orders.both without knowing that Frank has had this problem for 3 years. His regular doctor whom we saw on Monday said not to worry that those were the same numbers Frank has been having for a long time.

He said doctors and patients get all worked up over numbers and sometimes should just look at how you feel.

We Frank is feeling better and his walking statistics have improved since 2 weeks ago. His oxygen test he did over night showed he could use a slight more but go from 2 1/3 to 3 litters only. Also if he is walking around for a while or exercising turn it up and go on continuous rather than on demand.

He gave us permission to leave town with a couple of easy restrictions we can live with. Reporting in some results from breathing tests Frank can do on his own. just to make sure things continue to improve as they have been until he gets back to normal.

I think we will be leaving about the 6th or 7th.depending on the weather. I am sure you will have your kids and Janet to watch over you.

Love,

Judy

The ball is rolling....but very slowly!!

Okay, they can't see me for the assessment till Jan. 12 and then the radiologist probably on the 13th, but didn't get the time....she said they would let me know on the 12th....anyway then I don't see the surgeon till the 19th (as she only see's patients on Tuesdays) and at that time she will give me the plan. If they want to give me radiation before the surgery, it could take 3 weeks and I probably won't have the surgery till the end of Feb. Talk about the slow boat to China!!! So Kathleen, you can go to your wedding in Texas, and I will have to see about cancelling my trip to Florida....doesn't look like I will beable to fit it into the plan. I'm a little angry about that....but I know I will get good care when I finally get it. Two years ago, I was diagnosed in Oct. and didn't have the surgery till Dec. 12....so I guess this isn't much different. I have to be there at 8:30 a.m. on the 12th, may want to go down the night before and stay over nite at a hotel, and then I won't have to get up in the middle of the night to get there. I have to fast from Midnite on, so I don't know what kind of proceedures they will be doing at that time....or how long it will take....then I have to see the radiologist the next day, so I wonder what time, if it's worth driving home and back again the next day......questions still abound.
One bright note, they already got my daily radiation reports from 1996!

I started the ball rolling!

I got the call from the appointment coordinator this afternoon (after 2 p.m.) and gave her a lot of information over the phone to get me registered at Mayo, and then started gathering the information they want before they see me. i.e. Daily radiation reports from 1996 from a office no longer there....but I did track them down. Ran over to Health Partners Coon Rapids and signed a couple of release forms, so they and North Memorial could send them all my records, and films etc., but still no date yet...hopefully when she calls me back tomorrow I'll have that. I do know that it won't happen till atleast January 4. So I plan on celebrating completely everyday I have with family and friends in the Blessed season of Christmas and the merriment of a New Year.

One step Closer

Dr. Schlafer finally talked to Dr. Nelson at Mayo this a.m. and said they definitely want to see me. They will be calling me around noon he said....and then will set up a time to see them. So I don't know how quickly this will go, but it's a start! Schlafer is also sending me copies of my PET and CT scan reports, so I will have those, and he is drafting a letter to Dr. Nelson, with all the pertinent information about my case history. He said they would definitely use their intraoperative radiation on me, and maybe do some radiation before the surgery as well. So....now I wait for the call from Mayo. I am going to be delivering meals on wheels, so I will take a calendar and pen along with me....incase they call while I'm out. Will update you all this afternoon, when I get back from my deliveries. m

No News Today!!

I talked to Dr. Schlafer a minute ago, and he said he has been patiently waiting for the Dr. at Mayo to call him back, but has heard nothing, and promised to bug them again on Monday and will call me on Monday and/or as soon as he hears something. He also said he really thinks that Mayo will be where I have the surgery and any other treatment. He can't imagine they would say I didn't need their special treatment. So we can relax for the weekend, and see what Monday brings.

Please leave comments

Don't know if you all know you can leave comments at the bottom of each post, and you can also sign up to follow this blog, and they will notify you by email that I have updated it with a new post.
No news from the Dr. yet, waiting to hear from him this a.m. as he didn't respond later yesterday afternoon. The waiting games are always the hardest. Although I am still rejoicing that it is only rectal cancer! m

Good News of sorts!!

It is rectal cancer....the lab report came back, and I don't have to go in and have another biopsy. The doctor still hasn't gotten a hold of the surgeon at Mayo, but hopes to get a hold of her today, and will call me back after talking to her. He said if he doesn't call me back this afternoon, it's because he hasn't talked to her yet. But either way he will call me in the morning.
I am so thankful that it is just the rectal cancer back and not my liomyosarcoma!!! The lesser of two evils! Keep praying, Love ya, m

Wednesdays update

I spoke with the surgeon, this afternoon, and they are not sure yet which cancer has returned, as the lab work hasn't come back yet. So we are waiting on that. However they have decided that when they do surgery, they are going to send me to Mayo Clinic to have it, as they have a special kind of radiation there that they can do during the surgery, and one that I could have even though I've had my lifetime supply of the regular radiation. Will know more tomorrow. The doctor has promised to call and keep me informed as to what is going on. He is contacting a surgeon at Mayo by the name of Heidi Nelson. I may be in her care there. I promise to keep this site up to date, as it is the easiest way to keep everyone on the same page. It's hard to know who I emailed and/or called, so this will help a lot. Love, m

Christmas Greetings

Dearest Family and Friends December 2009
The holiday has ascended with the news my cancer is back. Most of you have responded with such love, prayers and support. I feel overwhelmed with the amount of love and calmness that fills my soul by numerous e-mails and phone calls all of you have made. God is actually carrying me through this and whatever comes, I know he’ll be there at my side, sometimes in the form of family and sometime as friends.
The year prior was incredibly fun with travel. Sedona in March with my traveling companion and friend, Bonnie, Sass, Southern Utah and many National Parks with my sister Kathleen, husband Gary, cousin Karen and husband Ruedi (from Switzerland). I spent the summer at the cabin with many friends and family visiting. During the fall, I was able to travel to Williamsburg, Virginia and Washington D.C. with 3 other women, and in October I topped it off with a trip to California to celebrate Aunt Loretta’s 90th Birthday. Many cousins from all across the country were there. Getting to know those California cousins was the greatest. Needless to say, I have the world’s best family and love them all. I also spent a couple of great weeks in Naperville, watching Tom and Karen’s kids while they were in New York on Business. So, I didn’t let any grass grow under my feet and don’t plan on it in the future either.
My children are all doing so well. Tom and Karen, now have a 16 year old daughter Emily, along with Kennedy 9, Will 6, and Presley 3. I have so much fun doing crafts, attending their school programs and sporting events when I’m there.
Bill and Kim have a superb long distance runner in Katie, age 13. Tommy, age 12, is active in scouts and little league. Luckily for me Katie, Allie and Nicole all play hockey and last year were on the same team, so I could watch all of them at one time.
Annie and Doug, are busy with Nicole 14, Allie 12, and Matthew 4. Nicole is a sprinter in the spring, runs cross country in fall and now is playing hockey. Allie does the same and excels in all. Matthew is in love with trains, cars, having Thomas and Lightening McQueen as his favorites.
Jimbo and Ann are now the proud parents of a 17 year old Jack, who is not only driving, but has a lovely girlfriend. Other than girls and cars, he plays baseball. Nick, soon to be 14, is also a baseball player, and runs cross country. I had the opportunity to watch 4 grandkids, all at the same time, at the same event this fall.
All the grand kids seem to be taking after their parents when it comes to sports, keeping their parents busy coaching, and managing their various teams. I’m really proud of all of them.
Wishing you and yours a Merry Christmas and a very Happy New Year.
Love and prayers,
Mary