Thursday, May 31, 2012
Day 1 1/2 of round 3
Strange round of chemo....went home with a clamp on and the pump off, but didn't figure it out till 2:30 a.m. when I got up to go the bathroom, and the realized the pump wasn't making it's familiar sounds, and realized the clamp closest to the port was clamped such, so I opened it and went to work to find the phone number for the on call for infusion assistance. I called at 2:45 a.m. and at 3:15 I called back and they finally called me at 3:20 and she said as long as I had undone the clamp it would be fine, and I asked if I should check the pump and she said no....but I went back to bed and kept thinking about how quiet the pump still was....so I took matters into my own hands and pushed the start button on the pump....and low and behold it seems to be working....just 14 hours behind time. I am now waiting to call HHH and see what they are going to do, as it won't be done pumping in my 46 hours of drugs till 3:30 a.m. Saturday morning....instead of noon tomorrow. I now am waiting for Dr. Londer's nurse to return my call.
While making these calls, I accidentally dialed Bonnie Sass's number with a fat finger on the touch screen of my phone. I turned it off quickly, but not quick enough, and Bonnie called me back within minutes (now I know who to call in the middle of the night) and I apologized and told her I would call her back this morning and/or if I really needed help other ...than the on-call nurse.
Yesterday's day at HHH otherwise went really well, Annie picked me up and I got to HHH on-time Judy arrived about 10 a.m. and we tied 2/2 with the cribbage matches and they were mostly close games except for one where I almost skunked her. I got to show off my pictures from both my weekend trips to Judy, and my grad pic and the reproduction 50 years later with Tom, Em and me in the background with all the staff. Judy drove me home and I went directly to the couch and slept till at 5:20 when I thought I heard the door bell, and went and checked, but now one was there, so I went back to the couch and slept some more...getting up to make myself some peanut butter and jelly toast (something I never eat) and then some pistachio's and then some granola dry. Strange mix of food. I had chicken and brown rice I could have warmed up, but for some reason I didn't want it. I went back to the couch and actually got off and started working on the computer at about 10 p.m. when I realized I had a missed call and a voice message from my brother at 5:20 p.m. telling me I hadn't blogged or hadn't pushed the publish button. (which must have been what actually woke me earlier) so I went online and realized that I hadn't published it.) So I then did....funny that is how the day started at 7 a.m. and continued till this morning at 3:30.
Tragedies come in 3's so what's next. I had planned on leaving for the cabin as soon as I got unplugged tomorrow....so maybe that will be the 3rd. I had asked Judy if she wanted to join me, and she has plans all weekend, so she wasn't able...now I may not be either.
Everything on my list for the Quick Pulse session with Sheila is better, so I may try that again. No response yet from HHH so can't update you on that yet.
Last and not least it's May 31st and 49 years ago today I gave birth to my first child. Happy Birthday Tom, love ya lots!
Love and prayers, m
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